Cancer Advocate Resources

Cancer Advocate Trifecta’s are advocates that are educated and experienced with not only Patient and Research advocacy, but also Legislative Advocacy and most importantly, Personal Advocacy.

DIA Global Forum, June Issue featured Patient Advocates: Click here to Read the Journal
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From Hopes to Cures, I’m Not Average Sandy C

How One Breast Cancer Survivor Evolved into an Advocate and Spokesperson for Several Breast Cancer Groups
Rosenthal Report, Oncology Times, December 15, 2013

Houston Highlights Breast Cancer Survivor and Development Consultant Sandy M Castillo
San Antonio NSIDE Texas MD Sept/Oct 2014

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Accelerating Anticancer Agent Development and Validation Workshop (AAADV) The patient advocate program provides a complete overview of the challenges each new therapy faces when seeking FDA approvals.

Alamo Breast Cancer Foundation (ABCF)
Located out of San Antonio, ABCF provides scholarships for the Patient Advocate Program and Hot Topic Mentor Sessions during SABCS.

American Association for Cancer Research (AACR)
Cancer advocates at AACR were led through a rigorous training program, hosted a poster session and also collaborated on a group presentation.

American Society of Clinical Oncology (ASCO)
The ASCO Annual meeting is held in Chicago encompassing all cancers with more than thirty thousand in attendance.  Scholarships are available for advocates through the Conquer Cancer Foundation.

Breast Cancer Action (BCA)
They work to keep breast cancer policies and campaigns honest from a grassroots level.  In the beginning, I was only one of twenty-three Community Leaders for Change throughout the country acting as a spokesperson for BCA.

Breast Health Collaborative of Texas (BHCT)
BHCT hosts an Annual Summit in Houston plus monthly online meetings to unite breast cancer resources within Texas.

Cancer Care Support Network (CanCare)
Located in Houston, Texas CanCare provides training for volunteers to who are matched with those going through treatment to provide hope and support.

Conference 4 Young Women Affected by Breast Cancer (C4YW)
This annual conference is an excellent way to get started in your advocacy journey.  2014 was the final year of this conference.  In 2015, YSC took the helm and started their first Summit for Women Affected by Breast Cancer in Houston, Texas.

Cancer Prevention & Research Institute of Texas (CPRIT)
Texas voters overwhelmingly approved a constitutional amendment in 2007 establishing the Cancer Prevention and Research Institute of Texas (CPRIT) and authorizing the state to issue $3 billion in bonds to fund groundbreaking cancer research and prevention programs and services in Texas. On May 1, 2013 I offered my testimony supporting the role of Cancer Advocate Trifectas within committees during the Public Health Committee meeting in support of HB149.

Department of Defense Breast Cancer Research Programs (DoD BCRP)
Hired as a Consumer Reviewer for the award mechanism is a rewarding job for an advocate.

DIA Patient Advocacy Program
As a Cancer Advocate Trifecta, this program educated and introduced the role of advocates in clinical trials seeking FDA approvals.

Encouraging and Sustaining Cancer Advocacy Programs and Efforts (ESCAPE)
This annual retreat is located at Miraval and is an excellent way to learn about compassion fatigue and meet other advocates while developing your focus.

First Descents Outdoor Adventure Camps for Young Cancer Survivors
FD is an amazing group of young survivors brought together for Adventure Camps.  I’ve had the pleasure to participate on FD Climb in Utah and FD Surf in Santa Barbara.

Facing Our Risk of Cancer Empowered (FORCE)
While at SABCS 2013, I had the distinct pleasure of serving on a panel along with Dr. Sue Friedman, the Founder of FORCE, who is passionate about her work fighting hereditary Breast and Ovarian Cancer with education and awareness.

Health of Women Study (HOW) Research Study
In 2013 YSC, Susan Love Research Foundation and Susan G. Komen partnered with goals to identify risk factors for breast cancer as well as factors that can contribute to long-term survival.  Anyone over the age of 18 can participate on HOW regardless of medical history, gender or geographic location.  Make sure to Participate!

Living Beyond Breast Cancer (LBBC)
LBBC also has a new Young Women’s Initiative including a Young Advocate Program.

Metastatic Breast Cancer (MBC) Alliance
YSC along with Dr. Susan Love Research Foundation, Susan G. Komen and numerous other nonprofits have joined together to transform and improve the lives of women and men living with metastatic breast cancer.

National Breast Cancer Coalition (NBCC)
Fran Visco is focused on educating and mobilizing advocates towards legislative action during the annual Advocate Summit.  And she founded Project LEAD which is a highly competitive annual educational conference held each summer.

Oncology Times – The Rosenthal Report (OT)
Eric has since moved to host his own report at EvocaTalk

Patient-Centered Outcomes Research Institute (PCORI)
Currently, I am a PCORI Ambassador in addition to having attended The Power of Partnership in Research:  Applying Patient-Centered Outcomes Research in Racial and Ethnic Minority Communities Regional Engagement Workshop to discover opportunities for Patient Advocates to join research studies as part of a team of Principal Investigators.

Research Advocacy Network (RAN)
I’ve attended the RAN hosted for Komen Advocates in Science in combination with attending ASCO Breast Symposium and found the Advocate Institute to be truly fascinating and educational.  In teams we focused on a topic, and together we wrote a backgrounder that will be used throughout communications at the community level.

San Antonio Breast Cancer Symposium (SABCS)
This annual symposium is held in San Antonio and focused solely on the latest research in Breast Cancer with more than seven thousand in attendance.  Make sure to apply for the ABCF Patient Advocate Program held during SABCS featuring international advocates.

Susan G. Komen Advocates in Science (AIS)
Advocates in Science are a small group of advocates supported by Komen who aide in their award mechanism as well as report on topics relevant to the community.

Women’s Empowerment Cancer Advocacy Network (WE CAN)
Headed by Dr. Julie Gralow, she focuses on areas of limited resources by bringing a network together to empower those affected by women’s cancers.

Young Survival Coalition (YSC)
As a State Leader and Face to Face Social Network Coordinator, The Young Survival Coalition focuses on young women affected by breast cancer and the issues specific to them including fertility, relationships and working during treatment.

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